Living in the Shadow of Anorexia Nervosa

Living in the Shadow of Anorexia Nervosa
A guest post by Rebecca Perkins

Eight years ago I finally faced up to the fact that all was not well with my beautiful 14-year-old daughter’s health. She had over many months and in all reality a number of years been gradually changing her eating and exercise habits. I didn’t want to see, I didn’t want to name what I suspected was happening to my girl.

The numerous trips to the doctor, the hospital trips for any number of ‘presenting’ conditions hid from all of us — family, doctor, friends, consultants — the fact that my daughter was suffering from Anorexia Nervosa. I was witnessing the gradual diminishing of my daughter. Her weight, her energy, her vitality, her general well-being and health were not what they were. The lack of concentration, her mood swings, and her withdrawal from life were all the evidence I knew I needed.

What unfolded next is a mother’s worst nightmare — the fear, the guilt, the anxiety, the sadness, the anger, the distress, the desperation. My daughter was sick. I had so many questions I wanted to ask her, the psychiatrist, the nutritionist, the psychotherapist, myself. I wanted to know why, I wanted to know how. This illness rocked our family to its foundation. My husband (at the time) was unable to come to terms with her illness. We have never spoken about it and are unlikely ever to do so. My sons were bewildered. The eldest (17 at the time) felt an enormous sense of guilt — “if I’d been a better brother”… “if I’d been around more” … “if I hadn’t done as much sport” … My youngest (8 at the time) withdrew completely, daydreamed his way through school and cried. His words still resonate, “I just want my sister back.”

I carried the weight of not only her illness but the emotional turmoil it was causing in our family. I supported my sons and my wider family in their anxieties. I found some support amongst my friends and my sister, but felt completely isolated and alone.

One of the hardest issues I had to deal with was recognizing and understanding that I couldn’t “fix” her. I couldn’t make her better, I couldn’t give her paracetamol or put a band-aid on a grazed knee. This illness was hers, not mine. She had to want to heal herself. In a way, I had to watch events unfold and be there with unconditional love for her at all times. When the rage came I stood and took the full force. When the tears came I sat and comforted. When the rejection of food came I suggested something else that might appeal. When the fear came I held her in my arms.

Friends and family asked me how I did it. How I coped day to day, week in week out, being constantly there for the family and my daughter. I’m not sure I had any other choice (yes of course we always have a choice, we can choose our attitude even when things seem impossible). I chose to get on with it. I chose to do all I could to be there for my family. I chose to allow my daughter to take control of her illness, her life.

I found a way to separate my daughter’s identity, the real person, from the behavior, which was the illness. I coped with whatever the “behavior” threw at me. My daughter wasn’t her behavior. Thinking back to how we parented when our children were young — we loved the child but didn’t like the tantrums. This is how I made sense of it in my head.

I now appreciate how resilient I am, how I bounce back after setbacks. I believe this is the case because I choose to live my life fully — ups and downs. Even today, 8 years on from her diagnosis, and I struggle to write without tears. Anorexia lived in our house for some time, casting a heavy shadow. It moved on, my daughter is well and living her life having learned like all of us from the experience.

This post originally featured in The Huffington Post and is reprinted here with full permission.


About the Author: Rebecca Perkins

Rebecca Perkins is the author of Best Knickers Always: 50 Lessons for Midlife and founder of RebPerkins.com. Her latest book 40 Words of Wisdom for my 24 Year Old: A Parenting Manifesto (originally a Huffington Post blog) was published in April.

 She began writing to make sense of her life after the ending of her 20 year marriage. Rebecca is a NLP Master Practitioner and Personal Performance Coach working with women to navigate the transition of midlife. She is passionate about midlife as a time for renewal and for living the second half of life with enthusiasm and vigour.

 As a coach she is challenging and fun, motivating and inspiring. Midlife has taught her to be open-minded, to take more risks, to enjoy the simple things and to live each and every day with the question, ‘If not now, when?’ She lives in London and enjoys supporting and being surrounded by her children, spending time with her guy and celebrating life after 50.

 You can contact Rebecca via her website and follow her on FacebookTwitterand Pinterest as well as YouTube.

Follow Rebecca on Instagram for her 365 days of self care #365selfcare 

(I recently read Rebecca’s book, Best Knickers Always: 50 Lessons for Midlife. It’s rich, warm and wonderful and full of practical, insightful ideas – a great read.)

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“Karen Young - Hey Sigmund has such a wonderful way with words especially around anxiety. This is her latest beautiful picture book that explains anxiety through the lens of the Polyvagal theory using the metaphor of a house. This shows how sometimes anxiety can be hard to notice. I think this book can help kids and teens better understand stress and anxiety. I loved it! This would be great for homes, schools and in libraries.
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Of course we love them, no matter what - but they need to feel us loving them, no matter what. Especially when they are acting in unlovable ways, or saying unlovable things. Especially then.

This is not ‘rewarding bad behaviour’. To think this assumes that they want to behave badly. They don’t. What they want is to feel calm and safe again, but in that moment they don’t have the skills to do that themselves, so they need us to help them. 

It’s leading with love. It’s showing up, even when it’s hard. The more connected they feel to us, the more capacity we will have to lead them - back to calm, into better choices, towards claiming their space in the world kindly, respectfully, and with strength. 

This is not about dropping the boundary, but about holding it lovingly, ‘I can see you’re doing it tough right now. I’m right here. No, I won’t let you [name the boundary]. I’m right here. You’re not in trouble. We’ll get through this together.’

If you’re not sure what they need, ask them (when they are calm), ‘When you get upset/ angry/ anxious, what could I do that would help you feel loved and cared for in that moment? And this doesn’t mean saying ‘yes’ to a ‘no’ situation. What can I do to make the no easier to handle? What do I do that makes it harder?’♥️
Believe them AND believe in them. 

‘Yes this is hard. I know how much you don’t want to do this. It feels big doesn’t it. And I know you can do big things, even when it feels like you can’t. How can I help?’

They won’t believe in themselves until we show them what they are capable of. For this, we’ll have to believe in their ‘can’ more than they believe in their ‘can’t’.♥️
Sometimes it feels as though how we feel directs what we do, but it also works the other way: What we do will direct how we feel. 

When we avoid, we feel more anxious, and a bigger need to avoid. But when we do brave - and it only needs to be a teeny brave step - we feel brave. The braver we do, the braver we feel, and the braver we do… This is how we build brave - with tiny, tiny uncertain steps. 

So, tell me how you feel. All feelings are okay to be there. Now tell me what you like to do if your brave felt a little bigger. What tiny step can we take towards that. Because that brave is always in you. Always. And when you take the first step, your brave will rise bigger to meet you.♥️
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#anxietyinkids #consciousparenting #parentingtips #gentleparent #parentinglife #mindfulparenting #childanxiety #heywarrior
If anxiety has had extra big teeth lately, I know how brutal this feels. I really do. Think of it as the invitation to strengthen your young ones against anxiety. It’s not the disappearance of brave, or the retreat of brave. It’s the invitation to build their brave.

This is because the strengthening against anxiety happens only with experience. When the experience is in front of you, it can feel like bloodshed. I know that. I really do. But this is when we fight for them and with them - to show them they can do this.

The need to support their avoidance can feel relentless. But as long as they are safe, we don’t need to hold them back. We’ll want to, and they’ll want us to, but we don’t need to. 

Handling the distress of anxiety IS the work. Anxiety isn’t the disruption to building brave, it’s the invitation to build brave. As their important adult who knows they are capable, strong, and brave, you are the one to help them do that.

The amygdala only learns from experience - for better or worse. So the more they avoid, the more the amygdala learns that the thing they are avoiding is ‘unsafe’, and it will continue to drive a big fight (anger, distress) or flight (avoidance) response. 

On the other hand, when they stay with the discomfort of anxiety - and they only need to stay with it for a little longer each time (tiny steps count as big steps with anxiety) - the amygdala learns that it’s okay to move forward. It’s safe enough.

This learning won’t happen quickly or easily though. In fact, it will probably get worse before it gets better. This is part of the process of strengthening them against anxiety, not a disruption to it. 

As long as they are safe, their anxiety and the discomfort of that anxiety won’t hurt them. 
What’s important making sure they don’t feel alone in their distress. We can do this with validation, which shows our emotional availability. 

They also need to feel us holding the boundary, by not supporting their avoidance. This sends the message that we trust their capacity to handle this.

‘I know this feels big, and I know you can do this. What would feel brave right now?’♥️

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